Mr Philip Wallace

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Charity details

The Hereditary Spastic Paraplegia Support Group

The Hereditary Spastic Paraplegia Support Group helps people diagnosed with Hereditary Spastic Paraplegia (HSP). We are a UK based charity, Registered in England and Wales. Our group was started as a 'self-help' group in 1989 by Stephanie Wyatt to support her affected husband and son. Today we have nearly 400 members, but are always trying to reach more people affected by the condition. So, whether you have HSP, love someone with HSP or are searching for information about a diagnosis, don’t face it alone, join the HSP Support Group today for help, support and practical advice on living with HSP.

Hereditary Spastic Paraplegia (HSP) is a diagnosis that covers a range of rare genetic disorders cased by one or more gene mutations. At present there are over 80 different types of HSP, with the gene mutation known for many of the types.

It is a condition of the upper motor neurons, which causes spasticity (muscle stiffness) and paraplegia (paralysis) of the lower limbs. Typically, those with HSP will have mobility issues caused by progressive spasticity and/or weakness of the leg and hip muscles. This can range from very mild ‘clumsiness’ e.g. trips and falls, through to a severe loss of mobility.

In the majority of cases it affects people from the hips downward, though there are some cases where the upper body is also affected. It can also involve internal organs, though this is mostly limited to the lower body. It is common that the bladder is affected, and the bowel and reproductive systems too. It typically has a slow progression, and in some cases the progression will stop. The rate of progression depends on many factors, even within families with the same gene mutation. The progression will vary in speed and scope from one person to the next.

It is a cousin to Motor Neuron Disease (MND) and commonly misdiagnosed as Cerebal Palsy (CP) - due to issues with walking and muscle tone. It also shares common symptoms with Multiple Sclerosis (MS) and other neurological conditions.

People of all age groups can have HSP, though some types may be more predominant in childhood or adulthood. Onset can be at any age and any similarity with family members can not be assumed. Some people may eventually need to use a walking stick or a wheelchair to help them get around. Others may not need to use any type of mobility equipment. For those with uncomplicated HSP, the condition has little or no effect on life expectancy.

Registered Number 1181539

http://www.hspgroup.org

Messages of condolence

From Gloria and Katrina 

.

You will forever be in our thoughts and prayers. A life taken too soon. Much love Nick, Jo, Pete, Karen, Connie and Rosie

Mr & Mrs nick edwards

Rest In Peace Uncle Phil. We will treasure our Happy memories of you, full of laughs and fun. Always in our thoughts (Especially when Rolling Stones come on the Radio!) With Love Chris, Katherine and Family x

Mr Christopher Hand

Always in our hearts. You’ll be very much missed but we have so many memories that we will cherish always. All our love Lyn and Colin. Xxx

Ms Nicola Peplow

Phil was a lovely man, loved a chat and will be greatly missed

Miss Linda Kemal

I remember your smile and welcoming nature all those years ago when I first came to your house to go out with my book end! You liked a get together and all our crazy antics! I am glad you are no longer suffering but we will all miss you. Rest in peace now Phil. Love Tracy (the other book end) and family xxx.

Mrs Tracy Hamilton-Hogg

A dear Uncle who always had a cheeky smile on his face and loved to get up and dance at those good old families party. I’ll always think of you when I hear Brown Sugar by The Rolling Stone. All my love Nicola and my girls x

Ms Nicola Peplow

Phil was a big part of my life growing up and I have lots of fond memories, especially his laugh!! you will be dearly missed by all xxx

Mrs Emma Grey

Phil was a lovely man and he will be missed greatly by his family and friends and it was a pleasure to know him.

Mrs Sheilagh Elliott

Service details

Cremation Service

10 December, 2021 10:45

Parndon Wood Crematorium

Parndon Wood Road, Harlow, CM19 4SF