Genetic Alliance Uk Ltd
About Rare Disease UK, We work with our supporters to raise the profile of rare diseases across the UK.
We seek to bring about lasting change offering better health and quality of life for individuals and families affected by rare diseases.
Rare Disease UK is focused on making sure the new UK Rare Diseases Framework is as successful as possible, and to ensure that patients and families living with rare conditions have equitable access to high quality services, treatment and support.
Rare Disease UK is a campaign run by Genetic Alliance UK, the national charity of over 200 patient organisations, supporting all those affected by genetic conditions.
Registered Number 1114195