Mrs Jill Kew

Charity details

Action Duchenne Limited

We work to achieve our vision by: 

  • funding research to identify and advance potential therapeutic strategies for everybody living with Duchenne, and support clinical trials and the staff and infrastructure required to bring trials to the UK.
  • campaigning for the NHS to provide their patients with the earliest possible access to medicines that have been approved for the treatment of Duchenne.
  • lobbying Government agencies to improve care and services offered to those affected by Duchenne.
  • striving to create an inclusive society where everybody is equal, where disability is accepted and is no longer a barrier in accessing transport and other facilities. 
  • building a community for all those affected by Duchenne – to bring people together to share their experiences and to raise the profile of the condition. 

While we hope that research and clinical trials will one day lead to a treatment, or cure, for Duchenne, we believe it is vital to support families living with the condition today. We support families from diagnosis through their whole Duchenne journey.

Registered Number 1101971

Messages of condolence

With deepest sympathy, Ron and Lynda Murphy

Mrs Lynda Murphy

With deepest sympathies to all the family. Remember all your happy memories. Sally, Chris, Joseph & Phoebe

Mrs Sally Man

with deepest sympathy to all the family this small gift to aid a charity that the family hold so dear.

Mrs Jennifer Parry

In memory of a dear sister

Miss Pat Hemmings

Jill, from Sue, Richard, Laura, Rob and George with all our love and happy memories

Mrs Susan Storey

Service details

Church Service

29 January, 2021 12:15

St Edmund

Ongar, Abbess Roding, CM5 0PA