Mds Uk Patient Support Group
MDS stands for Myelodysplastic Syndromes, and it is a group of malignant blood disorders in which the bone marrow fails to produce healthy blood cells.
All types of blood cells can be affected, causing a range of symptoms.
- Red cells (also called erythrocytes) – which carry oxygen to organs and tissues in the body.
- White cells – which collectively fight against infection.
- Platelets (also called thrombocytes) – which prevent us from bruising and bleeding.
How does Mds UK support patients?
- We can provide you with access to a list of UK consultants, specialising in MDS at specialist centres.
- You can contact us and receive help and advice by telephone 5 days a week
- You can join our national patient information meetings with specialist speakers or attend our small regional support group meetings, to meet informally and hear from local consultants and nurses.
- You can also request our information material and access our website, which provides the most updated information on MDS, patient stories and current research.
- We can put you in touch with fellow patients who may share their experience with you.
- You can take part in our online forum and share your experiences as an MDS patient, write or respond to other people's messages.
Registered Number 1145214